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Worth a Thousand Words by Cathryn Williams

October 8, 2009

This a brain tumor survival story about my son who is now a healthy, crazy 2 1/2 year old boy.

October marks the 1 year anniversary from when we learned that his seizures were due to a brain tumor just above his left ear; he was then 19 months old.

After many grueling tests, he underwent neurosurgery in December of 2008.  He came out of the 5 hour surgery paralyzed on his right side.  We came home from the hospital a few days later and began daily PT and OT sessions.  Then he developed meningitis through the incision site, and had to undergo a second neurosurgery on Christmas Eve to fix a popped suture around his brain and to cleanse the wound.

He was in the hospital for a week, confined to bed with a drain coming out of his back, to keep the pressure on the internal sutures down.  It was so hard to keep him flat on his back. By then he was 21 months old and who can keep a 21 month old still?

He was discharged home with heavy antibiotics that were administered around the clock.  We continued the PT/OT, and as the swelling in his brain subsided, the function on his right side slowly returned.  Within 8 weeks of his second surgery, he was back to his normal self, wandering around the house, laughing and playing with his older brother, and no one could tell he had undergone such a difficult winter.

We learned that the tumor was benign, and now my sweet boy has a clean bill of health, with a bright future ahead of him. To God be the Glory!

We celebrated his success in September 2009 at the Brain Tumor Foundation for Children’s annual 5K walk, and raised $1500 in support, which was way beyond what I imagined we could raise.

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We also learned that the pediatric neurosurgeon, who we had not seen for many months, was moving to another state. I made him a thank you card through Heritage Makers because I wanted him to see, with recent pictures of our son, what his skill and care as a surgeon meant to us. A picture is worth 1000 words, and there is no way a traditional card could have conveyed our gratitude for the surgeon’s fine work.

Storybooking is a celebration of life. Celebrate yours today.

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